The Phelan-McDermid Syndrome Foundation (PMSF) is a 501(c)(3) nonprofit organization is comprised of a diverse network of directors, advisors, staff members, and community volunteers who work steadfastly to improve the quality of life of all those affected by Phelan-McDermid syndrome (PMS).

It is the mission of the Phelan-McDermid Syndrome Foundation to improve the quality of life of people affected by PMS worldwide by providing family support, accelerating research, and raising awareness.

Our strategic goals play a critical role in driving action and delivering desired mission results. Our goals focus on building and maintaining an organization that delivers on our three mission imperatives through excellent programming and fundraising stewardship.

Charity

Health Care

Non Profit

Phelan-McDermid Syndrome Foundation

Phelan-McDermid Syndrome Foundation's headquarters in Osprey, FL, United States

Ronni Blumenthal

Diane Linnehan

Heidi Grabenstatter

Denise Croden

The Directors Team at the Phelan-McDermid Syndrome Foundation oversees the strategic direction and overall governance of the organization. This team is responsible for ensuring that the foundation's programs, family support initiatives, research acceleration efforts, and awareness campaigns align with the mission imperatives. They work collaboratively to guide and support staff, secure funding, and maintain the organization's high standards of performance and financial stewardship.

Directors Team

The Leadership Team at the Phelan-McDermid Syndrome Foundation (PMSF) is responsible for setting the strategic direction and ensuring the successful execution of the organization's mission. This includes overseeing the development and implementation of key programs, optimizing fundraising efforts, and fostering community engagement to improve the quality of life for individuals affected by Phelan-McDermid syndrome. The team comprises experienced leaders who collaborate to drive innovation and excellence in all foundation initiatives.

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Phelan-McDermid Syndrome Foundation

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Teams

Directors Team

Leadership Team

Offices

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Phelan-McDermid Syndrome Foundation

Org chart

Teams

Directors Team

Leadership Team

Offices

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