Founded in 1990, Telethon Italy is one of the biggest biomedical charity in Italy, whose mission is to advance biomedical research towards the diagnosis, cure and prevention of muscular dystrophies and other human genetic diseases. Telethon Italy focuses on scientific research and does not offer healthcare, material assistance to patients and families or advocacy. Since 1991, Telethon Italy has invested 394 million Euros in research and funded 2,477 research projects on more than 445 human genetic diseases, which range from basic research to clinical trials.

Biotechnology

Charity

Research

Fondazione Telethon

Fondazione Telethon's headquarters in Roma, Italy

This department provides strategic guidance and expertise to influence organizational decisions and directions.

Advisory Board

The Marketing and Communications team at Fondazione Telethon is responsible for developing and executing strategies to enhance the organization's visibility and engagement. This includes managing social media channels, crafting content to communicate the impact of their research, and implementing marketing campaigns to drive private donor fund-raising. They work to effectively convey Telethon Italy's mission, foster community support, and ensure consistent messaging across all platforms.

Marketing and Communications

The Regulatory Affairs and Compliance team at Fondazione Telethon ensures that all research activities and clinical trials adhere to relevant laws, guidelines, and ethical standards. They manage the regulatory submissions, oversee compliance with national and international regulations, and maintain clear communication with regulatory authorities. The team also implements and monitors safety protocols in accordance with health and safety regulations.

Regulatory Affairs and Compliance

The Leadership Team at Fondazione Telethon is responsible for steering the strategic direction and overall management of the organization to fulfill its mission of advancing biomedical research. This group oversees key operations including fundraising initiatives, resource allocation, and stakeholder engagement to ensure the continued impact and growth of Telethon Italy's contributions to the diagnosis, cure, and prevention of muscular dystrophies and other human genetic diseases.

Leadership Team

The Research and Development team at Fondazione Telethon is responsible for advancing scientific research aimed at understanding, diagnosing, and curing muscular dystrophies and other human genetic diseases. This team manages and oversees research projects, bridges basic research with clinical applications, coordinates translational initiatives, and leads programs to support the development and trial of potential therapies.

Research and Development

This department focuses on supporting and advocating for patients with rare diseases, ensuring their needs and concerns are addressed.

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People (6)

Jobs (0)

Other teams

Marketing and Communications

Regulatory Affairs and Compliance

Leadership Team

Research and Development

Patient Advocacy

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People (6)

Jobs (0)

Other teams

Marketing and Communications

Regulatory Affairs and Compliance

Leadership Team

Research and Development

Patient Advocacy

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